Personalized Medicine and the Patient
November 14 – 15, 2022 • Hotel Commonwealth, Boston, MA
Recognizing that the emergence of more than 75,000 genetic testing products and 300 personalized medicines over the previous two decades had not transformed most patients’ predominantly trial-and-error experiences with the health care system as many had anticipated they would following the completion of the Human Genome Project in 2003, the Personalized Medicine Coalition convened patients, patient advocates, and leading luminaries representing more than 30 institutional partners at the Hotel Commonwealth in Boston on November 14 and 15, 2022, to explore best practices and policies designed to increase personalized medicine’s clinical impact with attention to patients’ priorities for the future of health and medicine. By pointing patients, clinicians, and industry leaders toward solutions that can help bridge the gap between what is possible and what is practiced in modern medicine, the Personalized Medicine and the Patient summit helped light the way toward a brighter future for patients and health systems. This website provides links to video recordings of the summit’s discussion sessions. It also contains more information about the summit’s scope and significance.
Communications Lead, American Society of Pharmacovigilance
Patient harmed by severe side effects of antibiotic
Donna R. Cryer, J.D.
President, CEO, Global Liver Institute
27-year liver transplant recipient
Geoffrey Ginsburg, M.D., Ph.D.
Chief Medical and Scientific Officer
All of Us Research Program, U.S. National Institutes of Health
Robert C. Green, M.D.
Professor of Medicine (Genetics, Director, Genomes2People Research
Harvard Medical School
Founder, Blue Hat Foundation
Diagnosed with colorectal cancer in 2003
President, American Association of Kidney Patients
Former hemodialysis patient
Howard McLeod, Pharm.D.
Executive Clinical Director, Precision Health
Siddhartha Mukherjee, M.D., D.Phil.
Assistant Professor of Medicine
Timothy Yu, M.D., Ph.D.
Co-Founder, N=1 Collaborative; Staff Physician, Investigator;
Associate Professor, Harvard Medical School
Boston Children’s Hospital